Hello Nes123 and Welcome to Neurotalk Support Groups,

I am so sorry to hear about your daughter. It is terrible as a parent to watch your child suffer, knowing that you would take anything yourself for them to be able to avoid it.

You will find a friendly and supportive group here. Even if you do not hear from many parents, feel free to ask the group for info and support. We are here for you.

You and your daughter have had a lot of stress with those hospitalizations. I hope she got compassionate care and is settling well back at home. I assume they did everything necessary for workup of a cause for this? There are cases of spontaneous CRPS but if they are able to find and treat any pain contributors to her condition that will help.

Hold on to hope, improvement and healing are the norm. Recovery can be very slow and usually comes at a gradual pace. Physical therapy is a huge plus, just make sure they "start low, go slow". Using the limb as much as possible while avoiding pain flare is key. This is often not a condition to "push" through.

I hope you get the referrals your daughter needs quickly. May comfort and healing find their way to your daughter and family soon,


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