Quote:
Originally Posted by Rancar
They don't have an exact diagnosis in the sense of a name to my disease, but now I know it is an auto-immune deficiency that causes my body to get confused and attack nerve endings, likely as a result of getting vaccinations last year. Putting an exact name to it isn't going to change the treatment options in any meaningful way.
Believe me, I too have many sleepless nights worrying about the progression of my condition.
The sleepless nights and constant worrying don't help me at all, and I doubt they are helping you either. By getting the tests and seeing qualified professionals you are doing the right thing. Worrying about it now isn't going to change a thing and it could hurt by slowing down your bodies ability to heal.
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Rancar I feel the same exact way. I too have many sleepless nights worrying about the progression and what I'm going to be like in 6 mos/ a year from now. I have been trying so hard to find a "cause" too. The Neurologist just recently after 4 years says mine is auto-immune related. What is the point in "our" knowing what is causing this awful thing. I mean, is this real...Do we really have a progressive disease that will just continue to get worse.(?) I'm sorry , I just cant wrap my head around this. There is NO rhyme or reason for this pain! I am otherwise very healthy with strength, stamina and no muscle weakness ... I just don't get it.. Sorry for the rant!!!!