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Old 02-28-2016, 10:23 AM
Patrick Winter Patrick Winter is offline
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Join Date: Jul 2015
Posts: 269
8 yr Member
Patrick Winter Patrick Winter is offline
Member
 
Join Date: Jul 2015
Posts: 269
8 yr Member
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Quote:
Originally Posted by banjanti View Post
Hello fellow sufferers,

I just had an EMG and polyneurophaty has been diagnosed
It's mostly feets and hands, sometimes pain goes a bit up in the legs
I'm pretty much devastated

I don't have too much trust to medical personnel in the country I live, that is Bolivia in South America. I'm from Poland and most likely I'll be going back soon there to see if they can put correct diagnosis

First neuro here that conducted the test send me directly on high dose dicloflenac and Gabapentin without explaining too much or ordering any test that could find the cause
When asked he said it could be an effect of "neurovirus"

I went to another neuro with the result, he conducted psychical exam and said my reflexes are perfect, I have a feeling of vibration etc
He send me to lab, all results for thyroid, diabetes, liver, kidney etc came out fine
I'm still waiting for ANA and ANCA, but reactive c protein is zero
The only thing out of range was was GGT, but all other makers in liver function were fine do he said not to worry about
B12 was never ordered, but I was given a standard b complex

Is there anything missing?
My pain is not severe...yet. I think the neuropathy started about 3 years ago, maybe earlier. But that's the first episode I remember, I was feeling weak and had some flue like pain in my wrists and ankles, first attribute it to some fever, then when I was looking for a cause I couldn't find it. Last for about 3 months then I felt better to the point I forgot about it.
Then it came back for shorter period, again I've ignored it. I couldn't stand still for a long time without receiving discomfort and pain in my feet and calves. I've attributed it to flatfoot
A month ago or so I've grabbed something heavy and I was in pain in my right arm for few days, wrist and forearm, now i know clearly carpal tunnel pain
But last 2 weeks I've felt really ill, little appetite, pain all over, striking and disappearing
I was even diagnosed with rheumatoid fever by a local shaman
Diagnosis seemed ridiculous to me so I rushed to the neurologist
And here I am...it is clear that is neuropathy and it's clear that it progress
According to the first neuro while treating symptoms nerve should heal, but I'm not confident about his diagnosis based only on one exam
He wrote in the report "inflammatory polineurophaty with a compression caracter"
How could he knew if it's inflammatory or not just by EMG?

I still hope to find the cause...any advice would be welcome

I took some ciprofloxacin and levofloxacin for urinary infection and salmonellosis
If it had the effect I guess we'll never know

I'm not taking meds, but I'm tempted to go on gaba...pain gets worst at night and creates more anxiety
But from what I I understand there is no going back when you start taking it

I can tell you as someone who has taken Gabapentin that it is by no means a miracle pill. It basically, kind of works, a little bit. Its a masking agent, and a poor one at that. Its success rate is actually very small in relation to neuropathy pain, clinical trials have proven this. If you are having trouble sleeping at night because that's when the pain is the worst you may consider it for just a night time dose, because it will help you fall asleep. But, there are other routes you could consider as well, Magnesium most notably.

You can get off gabapentin, its not a no going back situation at all. Far from it. Don't know where you got that idea. As a matter of fact, many people find gabapentin tends to lose its effectiveness over time. i personally would avoid it if at all possible, simply because the cons outweigh the pros.
__________________
Diagnosis: Idiopathic Small Fiber Neuropathy (Statin Induced)




• R-Lipoic Acid: 100mg - 300mg Daily
• Acetyl-L Carnitine: 1500mg Daily
• Vitamin B12: 1000 mcg Daily
• Magnesium 500mg Daily
• Grape Seed Extract 200mg Daily
• Benfotiamine 300mg daily

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"Thanks for this!" says:
banjanti (02-28-2016)