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Old 02-28-2016, 06:08 PM
JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
8 yr Member
JoannaP79 JoannaP79 is offline
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Join Date: Feb 2015
Location: South England
Posts: 246
8 yr Member
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Quote:
Originally Posted by en bloc View Post
The dose of IVIG for immune deficiency vs that for neuropathy are VERY different. IVIG for neuropathy is triple the dose then used for immune deficiency, so it's not surprising that your neuropathy wasn't affected by the IVIG.
That's really interesting to know. I have had insurance cover through my employer so am so very lucky to be able to try this, especially living in the U.K where the NHS can't provide adequately for chronic conditions. The secretary arranging this said that for the 5 day loading infusion the hospital wanted a deposit of £15k. That is just for the deposit! I nearly fell off my chair. I cannot comprehend that much money and dread to think what the full amount is. It makes me realise why the NHS are so loathed to try it in experimental cases such as SFN.
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