I've been struggling with a multitude of small, annoying symptoms the last few years and have seen many doctors as a result. I have all of the symptoms of BFS, but I only know about BFS from the Internet, no doctor has ever mentioned it to me. I have the twitching all over my body, especially in my eyes, chest, buttocks and legs. I have tingling, cramps in my scalp, face, hands, legs, and feet: ESPECIALLY in my feet.

But my biggest symptom is the complete lack of feeling in the outer edges of my big toes. Three years ago, it started on the right foot, 18 months, the left. I also get tingling throughout my toes and up and down my legs. I get burning pain in my heel, toes, feet and right thigh, but it lasts for seconds at most and isn't severe. These symptoms are worst when I wake up in the morning and go away with activity (walking, running) in a similar way a foot "wakes up" when it's asleep.

I'm a 24 year old male, non-diabetic with perfect MRIs, EMGs and bloodwork. I had an autonomal symptom - frequent urination, and underwent a urodynamics study to rule out MS. The uro felt my bladder was not neurogenic and chalked it up to anxiety. I DO have very severe anxiety.

Now, my neuro thinks this might be a mild small fiber neuropathy, but my pain is very mild and 95% of the time I have no pain whatsoever. I am TERRIFIED I might one day have the severe, chronic pain that SFN patients report. I know it's silly, but I am debilitated not by pain but by the fear of it. I do plan to pursue a skin biopsy, but my neuro had to refer me to someone else to do it.

What could be wrong with me to cause SFN? Do I have severe pain to look forward to? I could live happily with the symptoms I currently have, my own fear is they were progress.

Thank you so much.