I can honestly say I get you. I was diagnosed with crps in both arms originally, now it states crps upper right limb, but I've had back n neck problems for years not kidding 14 yrs and almost 4 months, but my legs both have problems with both feet swelling and painful and burn and yes I do believe crps has spread to include lower limbs but Drs disagree and have diagnosed with stiff person syndrome. It's seeming to be a game of sorts. Physical therapy and adjustments helped dramatically. Also seeing a great neurologist I would suggest.