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Old 03-01-2016, 10:32 AM
SylvieM SylvieM is offline
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Join Date: Nov 2015
Posts: 129
8 yr Member
SylvieM SylvieM is offline
Member
 
Join Date: Nov 2015
Posts: 129
8 yr Member
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I second Cliffman.

My neuro stated insurance requirements mandated an EMG before small fiber biopsies. EMG tests primarily address long fiber (motor) impairment. I knew it would be a waste of time....and it's painful! I tested negative, as I knew I would, and ultimately had positive small fiber biopsies. I have autonomic and sensory SFN.

Took months.....and because of this odd logic, I'm comparison shopping for a new neurologist. I now have two appointments scheduled with new docs....hopefully one will be very good.

You might also wish to seek a second opinion if you can.

Good luck with this. It's hard to trust your instincts and easy to have high hopes for a physician when you're ill....but it's so important to have a smart and empathetic neurologist with this baffling disorder.

S
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"Thanks for this!" says:
Patrick Winter (03-01-2016)