Thread: Still in limbo
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Old 03-01-2016, 04:31 PM
purplelover1 purplelover1 is offline
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Join Date: Mar 2016
Location: Texas
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8 yr Member
purplelover1 purplelover1 is offline
Newly Joined
 
Join Date: Mar 2016
Location: Texas
Posts: 1
8 yr Member
Default Still in limbo

Hello everyone, I have neurological symptoms all over my body. From head to toe there isn't a part of me that at some time or all the time doesn't hurt, twitch or cramp. Been to so many different drs all focusing on one symptom, and not what is causing everything. Worst part and good part is that all test, mri's blood test, eeg emg all normal, I am the healthiest sick person. I have horrible fatigue and night sweats, exaggerated startle reflex my eyes don't open right, and I have difficulty walking, which has progressively worsened first involving one leg than the other. all of these including the gait problems come and go and of course neuro exam was normal too.

Very frustrating, I am right now in remission of sorts, walking is almost completely normal again, but over the past ten years I have noticed with each new flare up symptoms increase and spread. headaches weekly, bowel and urinary issues, but as of now they haven't a clue, and neither are they looking, until the next issue, my hands twitch too or jerk and I drop things frequently, I lose balance a lot and have tinnitus and pulsitis tinnitus too, my eyes don't always open together, I have vocal chord atrophy and yet have been told it's not neurological, I question myself sometimes, but then my hands jerk and I know it's neurological but until they can "see" something they don't believe me...sigh....
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