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Old 03-01-2016, 11:48 PM
bluesfan bluesfan is offline
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Join Date: Jun 2014
Posts: 733
10 yr Member
bluesfan bluesfan is offline
Member
 
Join Date: Jun 2014
Posts: 733
10 yr Member
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Hi Shaggychic

Sorry to read you're having to join the PN forum as well as the RSD/CRPS one - although it doesn't seem uncommon for them to overlap.

Re your question about the doc's point about 'PN doesn't act that way' - basically BS ... unless he knew specifically which type of neuropathy you have and what is causing it he would be unable to make that conclusion. There are more than 100 different types of neuropathy and just as many causes.

I have SFPN as a secondary condition to an autoimmune disease and mine has come on slowly over many years. Equally I have read many cases of SFPN coming on acutely due to post viral infection, drug toxicity, chemotherapy, surgery etc. Neuropathy that develops quickly is known as 'acute' those that develop more slowly are known as 'chronic'.

I'm posting a new thread with a link to an article about inflammatory neuropathies that I just found - it's interesting reading (although quite technical):

http://jnnp.bmj.com/content/74/suppl_2/ii9.full

There may be something in there that relates to your condition.

When you see your neurodoc at the end of March maybe ask him to write a report explaining to your GP (after all your GP is your primary health carer).

All the best with managing the pain in the meantime.

Last edited by bluesfan; 03-02-2016 at 12:00 AM. Reason: add link
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"Thanks for this!" says:
Littlepaw (03-02-2016), ShaggyChic_1201 (03-02-2016)