Thread: Deplin
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Old 03-03-2016, 08:44 AM
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
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Join Date: Aug 2011
Location: new jersey
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10 yr Member
eva5667faliure eva5667faliure is offline
Grand Magnate
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default Am I misunderstood

Dear informative friend

I have no doctor on my very important train that I'm driving
I yet to find a fairly decent general practitioner to get on board and take me seriously
As we speak I will be seeing my OBGYN for my annual check up
never in my history knowing this body well since a young girl
and have been on spot about everything
This be the truth
I just fired my shrink having been asked by the insurance company for my profile
If I'm paying for my bloody insurance
As it is deducted from my ssd income
And in addition copayment and coinsurance
deductible I am paying for services I EXPECT TO GET
how can that happen
WHEN NONE OF MY VERY IMPORTANT DOCTORS ARE NOT PAYING ATTENTION AND IM TIRED OF EDUCATING THEM

what I am saying
Not my shrink who dispenses meds (7 yrs)
Not my pain specialist (8yrs)
Maybe my oncologist asked me to bring in the information on the subject (on board the last four years after double mastectomy anniversary 1-9-12)
My OBGYN hasn't a clue until I see him today annual pap I missed last years as he was busy delivering babies
the office called to cancel my appointment
that I would get a call for rescheduling
NEVER HAPPENED
this year I must go I except for last year never missed my annual
Here is what I mean
Never say never
I am going to pray he sees the connection
Lets see who else
I have had check ups on my skin dermatologist
I had my colonoscopy (clear) that in itself is awesome news
as this mutation and I positive of one of the two variants
with a high homozygous
Foot dr, dentist not as often with my neck shoulders and back
yes the pain is that great
As a matter of fact
I live on the 19th floor
Getting on the elevator is excruciating
Nevertheless
This is how I take care of me and my children
I like to practice PREVENTATIVE HEALTH CARE
however I am finding out the doctors really aren't paying attention
For example
My ex ENT I needed to see for clearance for second surgery
was told upon looking at me not my report or the reason I was sent there expressed he did not believe I had a thyroglossal duct cyst

Now I have reached
Being so long winded for oblivious reasons
Oh just remembered
My reconstructive surgery (BOTCHED LEFT IMPLANT HAS WHAT IS CALLED A "DOUBLE BUBBLE" was lied to for two years until my oncologist requested me to go back to him
Turns out they are racquetball partners
Go figure
What are the chances with my luck

So
Not one doctor seen the red flag
And that is
I have tested positive for the MTHFR MUTATION
and now the connection that the ONLY WAY one acquires a cyst
such as mine
and the "neural tube defects" it will cause
as in my case all is true because of the findings of this very
sick degenerative inflamed body
Not any of the above doctors get
Nor do they seem to care

SO

I feel lost and alone

Why would I be not be told
As I asked the right questions because of my homework
the conflict

If it is the SAME meaning DEPLIN just another name for
L-methylofolate am I being lied to

I have no understanding and the array of vitamins I was asking of
Still no clear understanding is and could be quite expensive
I am on a very tight fixed income
It S.U.C.K.S

I not only want to limit the amount of things I put in my mouth
Is enough already

So the thought I am being misinformed
And that taking 15mg DEPLIN in tablet form AGAIN SHOULD (this is gray for me I admit)
Yet this is what was explained to me
ONE tablet

I am so confused at this point
I don't know if I'm coming or going

Hope I'm better understood
And look for any support here on NT

THANKS
Me
__________________
someone who cares
eva
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