Thank you Patrick for this much more detailed reply....I'm blown away by the insight and knowledge of so many people (like you!) participating on this forum. Such a boon to a newbie like me. It's just such a drag this disabling and painful disorder has so few treatments that are truly efficacious.....not to mention that many are just dangerous.

I'm taking all the supplements you mentioned. I also think Benfotiamine appears to help mitigate the pain. On the other hand, I also mistrust the unregulated supplement industry...I'm just taking it on faith (so to speak) what is on the label is in the pill!

Sylvie