Thread: 3 years...
View Single Post
Old 03-03-2016, 07:09 PM
randomguy randomguy is offline
Junior Member
 
Join Date: Oct 2013
Location: AB, Canada
Posts: 48
10 yr Member
randomguy randomguy is offline
Junior Member
 
Join Date: Oct 2013
Location: AB, Canada
Posts: 48
10 yr Member
Default 3 years...

Hello all. I am three years in to PCS now and although started to come to terms with the new me, quite scared some days that I will never get better. I was off work for almost 2 years and now being back at work for approximately six months I am experiencing severe symptoms. When I am at my desk or at home doing work on the computer I feel 80%. The issue lies in that each time I go to lunch or coffee meeting I feel very dizzy, out of sorts and shaky. Today I had to leave my meeting twice ( made up an excuse to leave the table), as I thought I was going to pass out in front of my customer. The feeling is unbearable and comes on very strong. Generally when I am at a restaurant. The initial stages are usually not so bad but approximately 15 to 20 minutes in I feel as though I'm going to pass out. It is the same feeling that I used to get is a child when you would hyperventilate and feel on the verge of passing out. When the symptoms come on my vision gets quite blurry and all that I can think about is getting out of the situation. I honestly couldn't remember just about anything from the meeting today. In the middle of the meeting I was thinking to myself that I should probably do a will soon, as the symptoms feel life threatening in the moment. I no longer feel in control of my symptoms and they are to the point where some nights before Falling asleep I wonder if I will wake in the morning.

I have been to countless specialists, physiotherapist, doctors of all kinds, masseuses, vestibular rehabilitation therapist, etc. As most of you, I am showing nothing on MRI, or CT and have been told that everything looks fine. The insurance company pushed me off of disability and urged me back into the workforce. I am now starting to think that this is the worst thing for me. That said I am now feeling helpless and working was feeling quite good in the beginning.

I had a follow up appointment with a vestibular therapist, Who said that he saw an abnormality in my left eye. He attributed it to my brain injury and potential distributor damage. The other therapist that I had been to told me that my tests were all normal. This specific therapist focuses more so I'm brain injury and vertigo. I will be seeing him for 7-10 sessions to see how I respond. The last go-round with vestibular therapy was not effective for me however upon reading more maybe I didn't get it long enough.

After the meeting today I came home and slept for 2 1/2 hours. I am still exhausted. I know I am preaching to the choir here but I wonder if things will ever get better. I will admit that I am quite a bit better than any year and a half ago, however I still have very nasty spells of the faintness dizziness and lightheadedness. Stress of any kind amplifies my symptoms and I truly feel helpless. I am going through a divorce and my ex does not take into consideration my symptoms and feels as though I am completely normal. She puts a lot of mental and financial stress on me. I feel like my life is falling apart.

If anybody has found any relief of their lightheadedness, dizziness, extreme mental fog and lack of energy I would love to hear about it. Practically begging for something at this point. Based on the supplementation thread of this forum I have been taking vitamins and minerals supplements every day for the past two years. This also includes a very expensive probiotic which I find helps with my stomach issues and in turn my brain. Circumin I have also found helpful at relieving neck issues and also providing some mental clarity and easing depression on the worst of times.

Anyway, after countless hours of research, forums, trying to take it easy, finding my threshold, suplementation, etc. I am still very ill and although a resilient person, at my whits end and some days truly fear I am dying.
randomguy is offline   Reply With QuoteReply With Quote