Kcmr166,

So sorry to hear all that you and your daughter are going through, but welcome to the forum.

CRPS can be very frustrating to all those that have to deal with it, patient, parents and other family and friends, and the doctors as well. It can be difficult to diagnose so do not get too frustrated with the doctors. It usually is a diagnosis of elimination, so that is one of the reasons that the doctors keep giving different a different diagnosis each time you see them. Have you seen a neurologist or pain management specialist that has experience with pediatrics yet? They are usually the ones most qualified to deal with CRPS. The rheumatologist is nice to have on board as well.

Physical therapy is one of the best treatments. Nothing works better than keeping things moving. If it is CRPS, your daughter does have youth on her side. Most children will go into remission if treated properly and given the time to heal.

I do hope that come morning, some of the other parents will chime in and share their experiences. I am sure that a number of the other members will do so as well.