same experience with neurology. Cornell was the only place that diagnosed acute small fiber neuropathy. I was ok for teo and a half months sleepwise. Then i started needing pills to sleep. My symptoms peak at night. Dealable during the day but the anxiety of not knowing my symptoms at night took its toll.

The sunburn and allodynua with sheets gets better with time? They fave me lidocaine cream but its not safe putting it on half your body. Neurontin helps but doesnt get rid of the scratchy sheet feeling. Its annoying symptoms get worse with poor sleep snd anxiety.

The doctor is going to repeat my emg and try a trial of steroids. There is an article from israel where they had dramatic rrsults. But was high dose.

Im just scared. Three months of focusing on this has taken its toll mentally and physically. Its the not knowing whats next that scares me too.

You seem to have survived. Scary that u still get symptoms. Sucks that this is so rare.