For those of you who know my story; I finally heard back from the environmental dr. I showed her all of the very clear and distinctive picture of the vascular rash the girls and I began getting last summer. One neuro said it is livedo reticularis, the dermatologist agreed. The environmental dr. just sent me her report and she suspects that it is erythema ab.
Maybe it will be another clue. I searched around though and can't find information on people who get it from the sun. I know the sun emits infrared energy, but everything I read talks about this condition happening from infrared heaters, laptops, sitting close to fires.... basically all constant and major overexposure to infrared heat.
This happens to us (normally very tan- never sunburned people), just from 10-15 min of sun.
This actually might help figure out the cause though. What could cause radiation to people that would set them up for such a reaction from a little sun (pretty suddenly and all with in weeks of each other?) Something has to have damaged us to cause this crazy reaction. Something that can weaken the blood vessels and skin? Getting closer maybe.