Hello all,
Been a while I logged in. I had an mTBI (Brain contusion) then followed the PCS. I was recovering for the first 5 weeks after my mTBI and then all went crazy with typical symptoms (head pressure headaches, off balance, fatigue etc., etc.,).
Initially on company disability then they denied. So after few months got a job to work from home and did that for 3 years. During the course tried very many things including medications and too many to list. Very expensive therapies too like Neurofeedback (couple times), Vision therapy etc., etc., Only medicine helps is Xanax. I am on minimum dosage everyday.
One thing which came back is my smell and taste. My smell almost gone after the injury and now slowly it came back close to normal. Neurofeedback might have helped on that one.
My symptoms go up and down on a daily basis. Rather say improved I learnt/learning how to manage. Tough. Then got sick and tired of being at home and took a flight to Bangkok (business class) few years ago and if I die it is ok. Interestingly my symptoms almost disappeared while on the flight and once I land symptoms always creeps up. Then took another international flight and symptoms disappeared again on flight.
Tried alcohol and went to a club and danced. I was at my best dancing while under alcohol. I can walk, talk, run, bend and everything. I just did this to see what happens. It was bit risky ofcourse. I can easily bring my heart rate up for hours and no issues. No headaches, dizziness and i can move faster even than so called normal folks
Then went back to work in office setting and managed for 10 months and all my symptoms came back with vengeance. Quit my job and took a flight to Bangkok (no symptoms on flight again).
Massages in Bangkok helps quite some and try to get as frequently as I can. Otherwise only alcohol helps but I don't like the hangover and I don't like drinking as well. If I go out now (mid afternoon) all the people, traffic etc., overwhelms and feel like fainting, headache, fatigue etc., During nights I always feel much better anyways so I do my activities during night.
Sitting in Bangkok and wondering what should I do. I still suspect something to do with inner ear or] (may be neck). I asked this question to Neurologist and other specialists why I feel better in a flight and when I drink (something like MDDS: Mal de Debarquement Syndrome)? No one can answer.
Yes, as with any TBI my case also unique and frustrating
What next?