Mat52,
I just wanted to add again that I'm sorry for your woes and appreciate you sharing your story. But also, regarding mast cells activation syndrome, that I posted this a short while ago, which you may or may not have seen:
http://neurotalk.psychcentral.com/thread233192.html. The article is useful. And I myself have begun using quercetin. It may be too soon to say, but it may be that my allergic reaction or food sensitivities have minimized even in the last week. But I can't be sure, and apparently it may take a few weeks and in some cases months. It may be worth giving it a try, if you think that mast cell mediators are at issue for you.