Oh Friend,

It pains me to hear what you have said, because I myself have been there so many times. Sounds like you have a great Hubby. I am so thankful for my wife. Seriously I don't know what I would do without her.I use a moist heating pad which seems to be better than the regular ones. But like you said I'll have these awful fits of hot and cold. However my right foot all the way up to my hip is always ice cold, where my left foot to hip runs burning hot and cold. I definitely have some major circulation issues and concerns on my right side that I need to be seen by a Vascular Surgeon. I haven't walked in 4 years, am completely wheelchair dependent as well as dependent upon others. So I completely understand not being able to bathe everyday or change clothes. It's beyond frustrating and a huge feeling of loss-of your independence or dare I say "normality." My hypersensitivity is off the charts, so I can't wear socks, have a blanket or sheet on my feet, even the slightest bit of wind or the pressure of the shower feels like broken glass. I try to stay away from ice, since its a huge trigger for me, but maybe a wet wash cloth on the back of my neck would help with my temperature issues and nausea. I actually drink about 2-3 cups of Peppermint Tea a day. And let me tell you it works wonders for the nausea and digestive system. I buy it in its natural leaf crushed form as well as grow it at my home to make big pitchers for the warmer months. I have definitely experienced those color changes, but now both my feet and ankles are so black, blue, red and purple from my most recent surgery(2nd of 4-6) that Its a mixture from the surgery and RSD.
I'll be honest with you, I've been experiencing major effects from my limbic system being so greatly affected over the last year, plus some change(speech, short term memory, cognitive and motor skills) that I either don't remember what LDN stands for or I just simply don't know. So if you wouldn't mine explaining it, I would really appreciate it.
I'm so glad that I am not alone with this. It's so hard to tell with this disease sometimes. Thank you for your response.