Abby wish you the best. This is one crazy disease!!! I ended up in ER last night I couldn't hold my head up without severe pain. I had a skin cancer removed 2 days before. So I'm guessing that was the cause.
They gave me pain pills and boosted my Pred to 60 mg for 3 days. I feel better already. I remember Mom and her sister both wore neck braces because they couldn't hold their heads up.
Prayers for you
Mike