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Originally Posted by rec60661
David - I live near Northwestern Medical Center and am waiting for a diagnosis from a Neuro who diagnoses and treats CIDN. My symptoms closely resemble CIDN; do I need a diagnoses before contacting NW's center for stem cell treatment?
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Oh, thank you. I have polyneuropathy confirmed by two EMG's a couple months apart; I get confused with the alphabet-soup for all of these diseases. I think it may be Chronic Inflammatory Demylinating Neuropathy, but am waiting to hear and asked them to send me results of the EMG. So far all blood work is normal, spine and brain scans are not showing MS. Symptoms are bilaterial ... very similar and first EMG mentioned likely axonal and/or demylinating neuropathy. Muscles definitely are affected; walking is difficult. Funny, but b12 shots which I take every 3 days plus other nutrients I learned about on this site seem to help. Of course, could not function without Neurontin and Cymbalta and low-dose xanax throughout the day; heavier doses at night.
Thank you again ... best wishes!