Quote:
Originally Posted by Sandy04029
How do you live with this pain? I have SFN mostly in my feet (since 2011) and most time it is unbearable even with pain medication. I also take Lyrica 600 mg per day, Benfotiamine and Metanx. For me the pain is actually worse during the day (I work at a desk job) and I wear slippers for most of the day. I want to scream out in pain most times but of course, cannot. I have also had two major back surgeries so I am unable to bend down to rub any type of cream on my feet. I am only 67 years old, the thought of this pain for the rest of my life leaves me wondering.....
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I am 54. I have had pain in my legs and restless legs since childhood, but the pain really became unbearably sharp in the past 6 or 7 years. It appears unaffected by activity, in fact walking improves it while I am walking. Later, not so much. Standing is very painful and I use a wheelchair if I will have to stand like at museums or theme parks. I have the burning and feeling of constriction as well, the SFN is up to hip/waist level now, but the sharp pains and deep ache are the worst.
I am on MS Contin ( time release morphine ), gabapentin, and Baclofen for muscle spasms. It has been very effective for me, allowing me to be more active at least part of the day. I really believe that there is a medication or combination of medications which would improve quality of life for most of us.the hardest thing is finding a doctor willing to listen and to have the patience for the trial and error necessary to find the best regime. Neurologists do not want to do this in most cases.