Thanks to everyone who expressed concerns. My son had a follow up appointment with a GI Doctor that specialized in Crohns. She wasn't as sure as the other Doctors that he actually has it. Upper/lower GI scheduled for Friday (unless she sees something when she receives the CT images that indicates it would be too risky).

Keeping fingers crossed. But while not convinced he has Crohns - the doctor also indicated he may still need surgery to remove the damaged section of intestines - depending on endoscopy findings.