I was just in the hospital for an exacerbation. I came home yesterday. I wasn't intubated, but my breathing was very compromised and they were watching me in ICU in case I did need to be intubated. They were able to initiate IVIG treatment, and that started helping, along with using the non-invasive ventilator (BIPAP machine). I have had this happen several times now, and each time, it has gone the same way.

I have another friend who has MG and has been intubated. She told me not to be afraid if I do have to be intubated at some point. While it isn't fun, of course, she said it isn't as bad as you imagine and that it's better if you can just relax, and let the machine do the work...not to fight it. She said it was okay and she got through it. I hope all of us will be okay, get the treatment we need along the way, and not end up in crisis and needing intubation, though!

Take care,
Erin