Quote:
Originally Posted by Glenmeadowfarm
Hi all, I'm new to the thread, 20 yrs into MG. The low points I'm experiencing are getting lower and I've had some prolonged respiratory distress. I really resisted going to the ER because I am terrified of being on a ventilator as a conscious, competent patient. Has anybody had to be intubated and ventilated to pull out of an MG crisis? Can you tell me what its like so I can manage my fear and have some reasonable expectations? Next time this happens I really need to go for help. Thank you!
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I had a crisis in Jan, this year. I was ventilated for 3 days. It could be worse, but no fun. At least is worked so far. Hope you can avoid it
FREDH