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Old 03-15-2016, 06:04 PM
FREDH FREDH is offline
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Join Date: Jul 2012
Location: San Antonio, Tx
Posts: 140
10 yr Member
FREDH FREDH is offline
Member
 
Join Date: Jul 2012
Location: San Antonio, Tx
Posts: 140
10 yr Member
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Quote:
Originally Posted by Glenmeadowfarm View Post
Hi all, I'm new to the thread, 20 yrs into MG. The low points I'm experiencing are getting lower and I've had some prolonged respiratory distress. I really resisted going to the ER because I am terrified of being on a ventilator as a conscious, competent patient. Has anybody had to be intubated and ventilated to pull out of an MG crisis? Can you tell me what its like so I can manage my fear and have some reasonable expectations? Next time this happens I really need to go for help. Thank you!
I had a crisis in Jan, this year. I was ventilated for 3 days. It could be worse, but no fun. At least is worked so far. Hope you can avoid it
FREDH
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"Thanks for this!" says:
AnnieB3 (03-24-2016)