Quote:
Originally Posted by SylvieM
Dear Boiler,
Gosh, your guy must be planning to move to a prestigious teaching hospital in NYC!
I'm glad you wrote me! The new neuro I just saw at Mt. Sinai (the silent one) also spent nearly a decade at the Cleveland Clinic....
I'm hoping the testing for Mast Cell Activation Syndrome (MCAS) will be fruitful....but I'll see who they assign me to in the other fields before I fully commit. There is a Dr. Shields there who I hear is good for dysautonomia... is this the doc you saw?
Good to get your feedback...Thank you.
S
|
Hmmm I honestly don't remember who I saw but I don't think it was a specialist for dysautonomia ... I looked at the CC website and the only name that maybe rings a bell is joshua gordon but I'm not really sure sorry. The doc that is outstanding is the one at OSU though. Can't say I was dissatisfied with CC evaluation - they were 100% willing to do extra tests including the MRIs (which was mostly because I was worried about MS - the doc told me no way its MS but he would sign off on the MRIs if it would make me feel better about it which I think most docs would not do). Maybe if you are having no luck with your current docs then this is the right move. For me I didn't realize how good the doc I already had!
Best of luck to you!