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Member
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Join Date: Jan 2015
Location: IL
Posts: 279
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Member
Join Date: Jan 2015
Location: IL
Posts: 279
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Quote:
Originally Posted by RSD ME
hi always. i hope you are feeling better today. i try to move as much as i possibly can too but also find that if i don't pace myself i will end up with an rsd flare that can last for days if not weeks sometimes. it's frustrating but that's what rsd can do sometimes. i hope again that you are feeling better.
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Thank you.
Alas, I continue to be hit with setbacks. Nothing due to what I've been doing. Everything to do with my 'support system'. Unfortunately, I NEED my support system...however, it seems they all have other things to do and my needs do not factor in. At least not without being a whiny b&*@h.
Even programs through the state/county/social services are not able to help. My SSDI is ~$25/month over.
If there are things I can control, I do my best to figure out solutions. Sadly, most of the issues I am dealing with are not under my control (The amt of SSDI I receive; utility bills (they are all on budgeted amts); no medical treatment; not being able to work; not being able to complete my ASN). The only things I see left to do are:
-Sell my house (most likely at a significant loss)
-Buy another house that is more conducive to my needs in a location that is more friendly to my RSD (no cold/no snow/limited rain) - which would leave me distanced from my aging parents which was why I moved here to begin with
-Totally give up ANYTHING and EVERYTHING regarding all things nursing (I was looking at reinstating my IL license to at least have that on hand ~$250 eeek! Simply cannot afford that with property taxes coming.)
-Apply for Medical Cannabis Card ($50/application; ~$60/product....not sure I can really swing either and certain this would affect my nursing license)
I'm so over everything right now. I have reached out for help and get slapped down constantly. The ONLY help I have is being able to vent and someone listens...nice & appreciated but doesn't get my trash can to the curb & back or go to the store for me or get the laundry done or...
I  you all!
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Believe in the Strength of Faith and Hope, within there is Peace and Love...Always ~pe
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