Hi there
Starting to get very frustrated, appreciate any help with my neuropathy. Have a sensory neuropathy but now have achy bone pain and GP and neurologist have said it is probably virus related or idiopathic. With GP saying if tests come back normal probably fibromyalgia even though I have absolutely none of the symptoms of that. Had this 9 months and came on relatively quickly.
Had four sets of comprehensive bloods absolutely nothing abnormal rheumatoid, ANA, vitamins, etc. Only borderline test was for Lyme disease but have not been exposed to it as live in NZ. On voltaren 100mg once per day which has made a little bit of difference. Medial ankle pain is getting worse both sides but cannot reproduce it functionally. The neurologist I have been seeing is just about to retire and has discharged me. Nerve conduction studies normal.
Would just like to get comprehensive testing and make sure there is no reason unturned. Prepared to travel if needed, I just want to see if I can halt its progression but Auckland and NZ seems too small to have this expertise. Very frustrated!! I would really appreciate it if you could steer me towards an expert in maybe acute or chronic sensory neuropathy....
