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Old 03-20-2016, 05:22 AM
Niggs Niggs is offline
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Join Date: Jul 2015
Location: Guiseley,West Yorkshire,England
Posts: 165
8 yr Member
Niggs Niggs is offline
Member
 
Join Date: Jul 2015
Location: Guiseley,West Yorkshire,England
Posts: 165
8 yr Member
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Quote:
Originally Posted by GerryW View Post
Thanks, Jo Mar. I am ever an optimist. I did contact the doc (not easy) and got an increased dose. We'll see how it goes.
Gerry,

For what it's worth this has been my experience .
Any dose adjustments, up or down, result initially in an increase in PD symptoms and worse off times.
I've been surprised recently by a swap from sinemet cr to stalevo. Even though the LEDD is the same after adjustments, for the last 3 three weeks I've been so Parkinsonian that I contacted my care team for the first time in 7 yr.
BUT, I'm just starting week 4 and Gerry things are getting much better. I'm now becoming more stable, for longer, quicker.
My neurologist has all his px' s on stalevo. (Stalevo = sinemet + entacapone).
Hang in there pal, 4-6 weeks to feel the benefit is often needed, a tough gig !
I suspect I could've been better medicated, earlier had I known this. It's only by getting angry and bull headed that I've found this out . Questions in the past have always been met with the obligatory "everyone s different" which is not strictly true. Everyone is in some ways different, but in others we are similar if not the same.

Wishing you a speedy relief to your suffering.

Nigel
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"Thanks for this!" says:
GerryW (03-20-2016)