If you go to the hospital because of respiratory distress, it doesn't mean you will get intubated immediately. Please don't refrain from asking for help because of this fear.

I always have this emergy information with me and my family knows about it too: for example, the brand and dosage IVIG, and the use of a bipap for non invasive ventilation. In my experience, when you still have time to even consider or wait, getting support from a bipap can often help you prevent needing getting intubated. It can take some burden of you diaphragm, help you get through the days until ivig / plasmapheresis kicks in.

Of course you can't control everything, and sometimes a crisis hits you hard, like when the flu hits you and you're from normal to boiling hot fever in 24 hours, this can trigger a crisis pretty fast an may need intubation. This, however, be it not a fun experience, you really do need at that moment and you are very, very sick: your body and mind somehow accepts it better. And sometimes they give you something sedative and that helps too.

So please, stop worrying about what ifs and maybe's (I know, I do it too), because this stress isn't good for your MG.

(Important: a bipap not a cpap; not recommended for MG, especially not in near crisis situations, because with a cpap you have to breath against pressure).

Wish you the best