Hi Becca and Welcome to Neurotalk,

You certainly do have a full plate and I'm sorry to see you dealing with so much AND Crps. That has got to be exhausting and worrisome for you.

Does your husband have any kind of in-home care and if not would he qualify financially with you on worker's comp? Department of Human Services disability program in Cali may be able to help.

Are you getting any emotional support? Therapy to help deal with the loss, changes, and feelings of anxiety and sadness that go with this kind of life change can be a huge help. There are even therapists that can help with coping skills for pain. I went to a therapist who specialized in pain and traumatic life change and did EMDR and hypnosis. I can honestly say that she changed my life for the better and helped me get of a deep, dark place after my diagnosis.

I find that you responded with three weeks relief from the sympathetic block to be pretty encouraging actually. Some people get these in a series. Keep pushing for Stanford pain or see if someone will follow their guidelines. They do sympathetic blocks with Botox added and people in that study got several months of relief instead of weeks. Some of the problem with CRPS is based in neural plasticity so the longer relief you can get the better chance you have of staving off or reversing brain changes from pain.

Stanford is currently doing a study on LDN btw, perhaps you could get in that way if they are still recruiting....

Hang in there and keep trying new things. It often takes trial and error to get relief. Baby yourself and your foot as you need. I slept in my La-z-boy for quite some time and then on my side in bed with my leg propped on a body pillow so my foot could hang off. Now I can sleep however I want. Do what rehab you can without flaring and don't give up hope.

Sending hugs and healing love,