Originally Posted by GerryW

I quit the Hinz protocol a few months ago. I did well on it for a few years but then my doctor quit employing the protocol and referred me to
Dr. Stein. Things went downhill after that. He tried to adjust my doses to get an effect longer than 3 hours but I became unstable and despite
lab tests and empirical adjustments I got severe side effects. My BP would alternately tank and I would get woozy and even fainted once then my BP would reach hypertensive crisis levels and I would feel like I was going to explode. This seemed to frustrate the doctor who seemed
to get discouraged.

Thinking my life was in danger I quit and went to the movement disorders department at a major university hospital where they put me on Sinemet.
That, too, has been problematical. Symptoms that had disappeared with the protocol, like tremors, came back strong plus I am only getting an hours worth of benefit from the Sinemet dose making me effectively house bound. Off times are much more profound than under the Hinz protocol. They are adjusting me but since they only want to see me every few months
it's slow going.

Were it not for the side effects I would probably still be on the protocol despite the expense and inconvenience but perhaps salvation
will yet be found in more pills.