Quote:
Originally Posted by jzp119
Yeah sure.
So when I'm not flared up I am mostly okay. I don't lift heavy anymore but I still run track and workout my lower body hard, so to everyone else I am mostly fine. But flare ups are a different story altogether. I get the dull/diffuse difficult to locate pain in my shoulder and tricep that just kind of sits at a 2/10 on the pain scale, my hands throb with my pulse and I have this gross pulling feeling down my arm in between my bicep and tricep. My shoulders/shoulder blades crack and grind when I move my arms around laterally and I feel like I have dead arms if that makes sense. Like it feels like I just did a rock climbing workout and arms and shoulders are just dead. I also have a sharp pain between my shoulder blades that is exacerbated by taking deep breaths or turning my head, which is absolutely the worst. I usually just take aleve and hide in my room until it reduces.
Flare ups are super weird, like I have had this since I was 17 (21 now) and I still am not 100% sure what causes them. They just seem to happen. If I decide to say **** it and lift really heavy on my upper body or wrestle with one of my friends that will for sure cause a flare up, but I can also get them from sitting and studying/playing video games. I now have a standing desk which helps a lot. Another sure fire way to get one is to lay or sit on anything soft like a couch or bed. I know it probably sounds silly but I have to sleep on the floor flat on my back, sit with perfect posture, or stay standing.
I am rambling a bit, but yeah that's the gist of it.
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This sounds really similar to what I have experienced. I was a heavy weight lifter - and now I have to take it very easy or it will surely flare up. I also have a stand up desk which helps a ton. Reading, using an ipad, or even checking my phone will cause irritation. I refuse to sit in couches as well, have to keep posture perfect as much as possible. If I sit in a couch it causes a flare every single time. MY thoracic spine/shoulder blade locks up. I also flare up for no particular reason at times. I try to stand as much as possible. I sleep on a very hard bed...soft bed and I wake up with that nasty spasming/burning feeling in neck, thoracic spine, upper arm and shoulder blades. I used a theracane for months and it really just made things worse. Countless massage therapists and Physical Therapists without really any relief.
If I were you, I would try to find a neurologist who is skilled at doing an EMG on the brachial plexus. They are hard to find...I went to 2 other physicians who said my nerves were fine just like you, the 3rd one said I had chronic suprascapular/dorsal scapular neuropathy which explains the symptoms. He is the only one who performed the EMG on the brachial plexus. I would bet the problem itself lies above the collarbone.