Originally Posted by Peony

Blackfeather, have you been diagnosed with MSA, or with PD? Answers to your questions would probably be quite different for each of those. I don't know enough about MSA to say anything about that.

But if you do have PD, does your dystonia improve or worsen after taking C/L? In my case, I have tremor dominant PD and the dystonia was clearly worse, not better, after taking C/L. It was caused by the meds, not by PD. Meds actually did me more harm than good, though later in the disease they did help with low energy, so we had to try to find a balance. My neuro says that current thinking is that 60-80% of those who are tremor dominant do not improve with any of the meds. Also, I would agree with Zanpar : DBS has greatly improved my dystonia, so that would be worth checking out. Just keep in mind that we are all different, but there is hope. Best of luck.