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Originally Posted by TryingMyBest
I too have tremor dominant PD and have gone med free for 5 years. Then due to worsening tremors tried carbidopa for 4 months for no relief so I quit.... only got nauseated. Thought about the Hinz P but the idea of large amounts of the stuff to take in the beginning with only more and more to take in your future turned me off. Tried Requip (bad stuff) and Cogentin (nope) and Amantadine (ok). Now in the middle of DBS looking for tremor relief.
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TRYINGYOURBEST,
just curious, i'm signed up for DBS evaluation and it looks like a very rigorous series of tests in 1 day, especially being non-medicated for 12 hours. would you mind summarizing your testing experience? it seems like besides gathering info necessary to present to an insurance company that you need DBS they also want to make sure you can withstand a day of stress that won't be nearly as bad as what the DBS operation will be like plus see what support you bring with you? Did you wonder about this, cuz it seems like they could easily schedule multiple appts for the URDS(?) unmedicated eval, depression, dementia and final neuo exam. sorry about being so nosy.