Hi,
My wife saw an MDS specialist at Mass General Boston yesterday, he seems very competent and caring. They do DBS there. As I have mentioned in the past, my wife probably has serious L-dopa induced psychosis. She is taking approx 1300 to 1500 mg of Sinemet every 24 hrs. Until the doc gets to know my wife, he is going to put her on Rytary - 3 pills every 3 hours except for a break 4-5 hour break after 11pm. She is also seeing a new psychiatrist who my change her from Seroquel to Clozapine for psychosis, if she takes the pills. The neurologist will evaluate her for DBS at a later time. He wants to see if there is an organic component to her psychosis which, I suppose will eliminate her for DBS. I mentioned ECT (shock treatment) as a possible alternative. He may consider that as well.
Have any of you who have had DBS, been evaluated for DBS or talked about DBS with those who know have/had issues with psychosis??? It does tend to occur after about 8 to 10 years of PD.