Hello all,

Since my previous thread, I have been diagnosed with bilateral neurogenic TOS by Dr. Freischlag at UC Davis and was told that change of my hand color is sympathetic nervous system overreacting. My pain is quite severe, I feel like my both shoulders are burning. I'm so afraid of losing my nerves as I've had an EMG that showed chronic neurogenic changes in C8 T1 both hands muscles with mild poly phasic units in paraspinals.

I have few questions I want to discuss with you:

1. should I see a neurologist ASAP?

2.Also I'm trying to decide between taking a trip to UCLA to see Dr. Gelabert and Stanford to see Dr. Jason Lee. Any thoughts about this choice? As I mentioned, I've already seen Dr. Freischlag and really liked her. She gave me 8-12 weeks of physical therapy. Coincidentally, I have two appointments with Dr. Lee and Dr. Gelabert on the same day and if I reschedule one, both will have to wait for another month. I have been trying physical therapy, mostly myofascial with manual therapist for about a month and haven't seen any improvement. I just had a big flare up 5 days ago and in pain 8-9. I started feeling tingling in my legs as well...(I really hope that this sensation is from lying down and also from doing Edgelow breathing with my pelvis moving consttantly...) No relief from Edgelow either, as far as I can tell, although it's been only 4 weeks..

3. I've been rejecting to take gabapentin, but with this pain, I think I will have to try. If it calms down my pain, will it make my injury worse since i will move more??

4. When I'm in severe nerve pain like now, should I cancel the manual therapy?
Most of my pain is nerve pain and I found so far no relief from any manual modalities.


Any thoughts on doctors? Taking meds? Any future to-dos?
Thank you in advance for any input!!