Member
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Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
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Member
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
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I would be interested too. I don't even have a seronegative diagnosis. But I managed to talk my GP into trialling Mestinon over a year ago.
When I started at 30mg, and the effect was VERY positive, I thought I was cured, sort of.
However I have now had to increase that to a much much higher level and although the effect is still positive, it is not keeping up with the progression of the disease (whatever it is that I have) and I am concerned that I shall be hitting the upper limits of Mestinon, even before I get a confirmed diagnosis.
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