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Old 04-01-2016, 09:51 PM
dacello dacello is offline
Junior Member
 
Join Date: Feb 2016
Posts: 16
8 yr Member
dacello dacello is offline
Junior Member
 
Join Date: Feb 2016
Posts: 16
8 yr Member
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Quote:
Originally Posted by Littlepaw View Post
Dacello,

Second opinions are sometimes life changing. There is nothing wrong with getting more information, especially if potential surgery is at stake.

As someone who suffered a nerve injury and repair, then RSD/CRPS from a later and unrelated surgery I would encourage you to try medications to get your nerve pain more settled. Intense, noxious pain input is not healthy and over time can cause changes in pain processing. These can revert with pain reduction - thanks neuroplasticity - but your pain has to get controlled first.

Taking a medication that helps calm your nerves will make you more comfortable and help reduce inflammation in your nervous system. Gabapentin is a common choice for this as are some of the old tricyclic antidepressants in much lower doses than used for mood. I had luck on both gabapentin and nortriptyline. Separately not together, at least for me.

Either neurology or pain management can help you. Getting started on something may also help your PT. With ramped up sympathetic nerves it is quite difficult to tell what is what. You may be able to do more safely but just can't tell because of pain from upset nerves.

I hope you get relief soon.
Thank you littlepaw

I just have this weird symptoms, but I don't quite understand. When I sit up or stand up, I have this puffy stuff on both sides of my neck, right above the clavicles. Is that normal with TOS? This is why I have such a hard time doing anything. I feel like the puffy tissues are pressing on my nerves when I stand or move. They also press on blood vessels, because the palms of my hands turn dark red when I stand or sit. Obviously a problem with circulation. Does anyone else have these symptoms? Any way to reduce the puffy stuff? Is itinflammation in the scalene muscles? If so, does anyone know how I can reduce that?
My PT thinks it's inflammation and she suggested that I put ice on it. However I do not think that icing my scalene's is a good idea because it tightens them up. I almost feel That if I solve this problem, I could do so much more in PT and in general. Right now I even have to put Edgelow on hold...

Last edited by dacello; 04-01-2016 at 10:26 PM.
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"Thanks for this!" says:
Littlepaw (04-05-2016)