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Old 04-02-2016, 08:23 AM
BioBased BioBased is offline
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Join Date: Jun 2015
Posts: 630
8 yr Member
BioBased BioBased is offline
Member
 
Join Date: Jun 2015
Posts: 630
8 yr Member
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My pain is constant, too, I have not experienced a flare either, but I have experienced painful set backs in recovery. My agonizing CRPS pain was reduced significantly once I started taking Low Dose Naltrexone. I was in really bad condition, heading toward permanent wheelchair disability-foot drop, dystonia, allodynia, toes that stood upright, lax ligaments, deep sores, swelling, thickened skin. I recall how shocked my sister was when she saw the condition of my feet/legs and the extreme length of time it took me to remove my shoes and socks-she also recalls the tears and sobs.

Like you I was not especially fond of my painful limbs. My co-worker called me "the cripple," while suggesting amputation as a solution. Please put this thought out of your mind. Specialists think CRPS is phantom limb pain with the limb-so you are likely to still be in pain after the limb is removed. The pain is signaled from our brains not our limbs.

I had little luck with doctors, who delayed diagnosis, so I was forced to seek remedies on my own. I slept with a stool holding the covers off my feet-as someone here brilliantly mentioned a walker would also serve this purpose.

I wrapped my legs and feet in Saran Wrap after I used an enzyme based exfoliate, applied lotion, followed by liquid lanolin. It was too painful for me to manually remove dead skin. I found support stockings a torment. Elevation did not visually help me, but I still elevate because it might help in a way that cannot be seen. I wicked off accumulated fluid with washing crystals (wacky sounding), once I did this I experienced a change for the better in my skin. I think removing the extra fluid allowed my lymph system to get back to work and do its job.

For deep sores that were not healing I put scotch tape on them. This is basically occlusion therapy and it is considerably cheaper than prescription tape. I found the good stuff worked the best. If you do this please try a patch test first-you don't need an allergic reaction on top of everything else. I wish I had a video of my PT's reaction when she saw the tape. I know she thought I was a kook, using washing crystals, Saran Wrap and Scotch Tape, but these nutty things worked.
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"Thanks for this!" says:
ger715 (04-04-2016), PurpleFoot721 (04-03-2016), RSD ME (04-07-2016), St George 2013 (04-04-2016)