Wow, I can relate. Some of these doctors just aren't even capable of even acting like they care to figure things out or they just think they know everything. Seems like I am stuck between sweet ones who shrug their shoulders and say they wish they could fix me or know what caused this and the others who don't care about the cause and just tell me to take meds and deal with it.

I'm surprised you haven't had the celiac test yet. It was recommend that I have it done again since 7 years ago the tests have been much improved according to a gastro I just saw. I haven't had gluten for 1.5 yrs though, so I'd have to go back on it for the test which I am scared to do. I contacted Dr. Mullen who is a gastro at John Hopkins and told him my situation. He said that he doesn't think anyone with an autoimmune process should eat gluten. Have you ever tried to completely go off for 6 months?