there was a person who used to post here who ran a support group in Florida near Shands. I cant remember his name but i think it was his group at the time. its in jacksonville. maybe they could help with suggestions. im sorry to hear that you are not doing better.

JACKSONVILLE
ALAN BERGER, M.D.
KAREN PERRIN, RN
TEL: 904-244-9719
EMAIL: KAREN.PERRIN@JAX.UFL.EDU

MESSAGES AND ANNOUNCEMENTS:
NAME OF GROUP: JACKSONVILLE PN SUPPORT GROUP
MEETING PLACE: U.S. HEALTH JACKSONVILLE
ADDRESS: 580 W. 8TH STREET, TOWER #2, 10TH FLOOR, JACKSONVILLE, FL 32209
TIME: 2ND SAT OF EVERY MONTH FROM 10:00 TO 11:30 A.M. (SIGNS WILL BE POSTED INSIDE ENTRANCE WITH CONFERENCE ROOM LOCATION).