Quote:
Originally Posted by glenntaj
--who is quite the expert on neuropathy, and wrote some influential papers about investigating neuropathy causes, worked out of Jacksonville Shands with Dr. Berger for a time.
I believe he's now out in Englewood Colorado.
Still, the work that's been done at Shands has given it a good reputation for neuropathy diagnosis/treatment; I feel bad that you haven't been able to have a good experience yet, but have you been to Jacksonville Shands?
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Hello glenntaj,
My last neurologist in Jacksonville before we moved to Ocala was from Shands Jacksnville. His name was Dr. Michael Pulley. I believe he co-authored a medical article with another neuro. He has a good bedside manner. But when I was diagnosed with Mycobacterium Avium, Restrictive Lung Disease and Bronchiectasis, he sort of suggested that I should focus on dealing with my lung issues...a polite way of saying that he was taking a backseat in my treatment. He did a skin biopsy last Feb 2012 (4 months after mt symptoms started) and came back normal. Last year before we moved from Jacksonville, I had a consult with him and he referred me to a sleep disorder specialist hoping that my problem may be caused by sleep apnea but then again, the result was normal.
I saw a new neurologist in Ocala...well, he said after another NCV and EMG, i have a "mild neuropathy and a bit of fibro". I told him my pain is not body-wide but limited to (both) thighs down to feet. He gave me Aptiom and referred me to hydro therapy... I stopped Aptiom as its starting to trigger my vertigo and I could not make myself awake (even how much I tried). I know this loopiness is compounded by Gabapentin, which I am on since 2011. I am teying to wean off very very slowly from Gabapentin, in fact i am now just on 600mg daily because of noticeable brain fogginess.
Thank you for your feedback...truly appreciate it.
IPN