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Old 04-08-2016, 11:18 AM
shug2003 shug2003 is offline
Junior Member
 
Join Date: Jun 2015
Posts: 20
8 yr Member
shug2003 shug2003 is offline
Junior Member
 
Join Date: Jun 2015
Posts: 20
8 yr Member
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Quote:
Originally Posted by Blackstar25 View Post
That's really disappointing about Thompson. I'm hoping they could give me advice on conservative treatment and avoid any talk of another procedure.

Your story sounds just like mine minus the DVT. I started having issues about 3 1/2 years post op. If I understand correctly, my surgeon removed part of my anterior and didn't take out all of my middle, I still have my rib. My scalenes are hard as a rock now. What you said about them reattaching, that's what I would love to know. Are they stuck to the BP somewhere else now?

5 months ago I had a neuritis flare up that kept me out of work for 2 months (I've been back for about 2 months, 8 to 5 desk job). What I think is my anterior felt like it was on fire below my clavicle and next to my sternum. This lasted for about 4 to 5 days and was followed by months of pain that felt somewhat like soreness. Burning in my hand during that time too, all in the medial pattern. I'm still feeling some of this pain, my anxiety is through the roof thinking about it happening again.

And BTW, I live in Birmingham. We have one of the best medical systems around (UAB and the Dr. Andrews group) and I have yet to find a PT that has much knowledge of TOS.

Sorry I highjacked your thread jzp119...
I've never been diagnosed with brachial neuritis, they checked for that at mayo and said I didn't have it at the time but could possibly have had it in the past. I am familiar with that clavicle pain/sternum pain as well. My pec major/minor flare a lot on my surgical side as well. I believe the sternocleidomastoid muscle attaches to the sternum and can go off since it has to do so much extra work at times with so many other missing neck muscles (resected scalenes, omohyoid). The fear/anxiety of brachial plexopathy flares are the worst....the mind is constantly fixated on how to avoid it.....hard to think about anything else which probably perpetuates pain.
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