Thread: New diagnosis
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Old 04-09-2016, 03:51 AM
banjanti banjanti is offline
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Join Date: Aug 2015
Posts: 60
8 yr Member
banjanti banjanti is offline
Junior Member
 
Join Date: Aug 2015
Posts: 60
8 yr Member
Default New diagnosis

Ok, since my last diagnosis I've consulted a new neuro, he did pretty long clinical evaluation and didn't find anything abnormal, he said he doubts I have polineurophaty, suspected tetania if anything, told me to get tested for lyme and if not for tropical infections and redo only nerve conduction
I went to do EMG but the doc doing it had a different idea when asked about my symptoms and decided to do needle EMG
After 2h of shocking and pinching she said she didn't find any problems with conduction and thinks peripheral nerves are not in involved, there are however two muscles showing fasciculations and some fibrillation
She said she can't exclude motor neuron involvement, but admitted it would be inconsistent with pain
Lyme is still on the table, I should have results soon
But I'm anxious again about MND not being ruled out by EMG, I don't know should I trust my first neuro who said "100% not ALS" or the other one. She doesn't call it ALS of course, but we all know that if it's motor neuron it's always a possibility
I'm wondering what also could cause fibrillations in the muscle without any atrophy, weakness or other clinical presentation
Maybe she is misinterpreting it
Fascis bother me all the time, but it's legs and arms
Legs muscles didn't show any fibrillation but I feel them there
My electrolytes in blood are normal, apparently they can still be low in tissues
Not really sure what to do
The idea of EMG neuro about waiting half year to see if it can be NMD makes clinical sense I'm sure, but I can't be in that state for so long
Maybe sounds weird but I hope lyme show up positive, at least it will show in direction of devastating but treatable disease

Last edited by banjanti; 04-09-2016 at 06:03 AM.
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