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Old 04-11-2016, 07:04 AM
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
Grand Magnate
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
eva5667faliure eva5667faliure is offline
Grand Magnate
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default Dear Sam

It doesn't matter how old or young we are
I understand what You are going through
WE always need somebody who is listening
And Sam
Look how many of Us are listening


I for one have gone through exactly what You are going through right now
Please do Not give up
Sam I am not one to say or write anything that hasn't happened to me
And let me tell you
It has been a Hell of a ride with doctors in my life

You are feeling what you are
I know
Because my doctors aren't listening to me

But like you
I did Not give up

Nobody was going to tell me what I was Feeling or not

No doctor was going to push another pill my way
Without doing intensive homework
I may be much older than you
I am fifty five
I remember things at the age of two
So I am told
Way to much to explain why I mention

I point I am trying to make
I knew at an early age what was the truth
And it hurt nobody believed me
Not even my own Mother

If I read correctly
Your hardcore support is your family
Am I right or wrong
This I ask you

Because if you do have somebody who is
LISTENING
And beleive in You
You have nothing to worry about

Yes someone has to get to the bottom of things

Look I just not to long ago being tested how my coagulation is doing
Because what going on with the veins in my hands and feet
None of my doctors heard of anything like my PICTURES HAVE TO SHOW AND THE WORD OF MY YOUNGEST who lives with me

and
Because of this extensive bloodwork
"I"
Not my doctors
And because I want to know what my tests revealed
"I" came across a mutation I have
I was born with it
It is called the "MTHFR DNA MUTATION
POSITIVE FOR ONE OF THE TWO (VARIENTS) TESTED
ALONG WITH A HIGH LEVEL HOMOGENOUS "

YOU READ RIGHT

well the next thing you know
Not that this is what I suggest You do
But after being with my phycotheripist for seven plus years
to help me with my deepening depression
And putting me on this that and the other and the other and the other
for some odd reason my body REJECTES so many medicines
It took forever for my body to find the right pain pill
To JUST MASK MY PAIN
As nothing turned out as expected
I have no control over that
But to live with the doctors I put my life into THEIR HANDS
and to be failed over and over again
Was enough
I am not a stupid person
Enough was enough
I was even lied to by a few of my doctors
In the end I have come to learn so many negative things about him when I began to learn about my mutation to the extent I am still not done learning
It seems like in my case
The missing folate DID ADDRESS my DEPRESSION that became very serious
What made it worse for me was the drug you are on
I am by "no means" suggesting you not try the antidepressant

But look what happened to me

Because of my mutation
Any
I mean
Any antidepressants I was on
I was not getting any benefits form them
WHY
BECAUSE of this mutation

It has been suggested
Anybody who is on antidepressants
And have TRIED slew of them
In the time with him

Ironically I stopped all antidepressants
before finding out that this mutation hinders
the effectiveness to zero
And recommended to stay on the antidepressant
And to start taking the missing

FOLATE I WAS DEPLEATED OF
and know more than fifty
Hear that
More than FIFTY PERCENT OF THE POPULATION HAS IT
it could have saved me of many things that has gone array
with this body because of this
Missing link

Turns out only one of my four children has gotten tested
I am estranged from them
But did manage to get the information to them
And like I was saying one has tested positive already
She suffered many things that the missing folate will do
along with other nutrients
Another very important one B12 B2 B6 magnesium TMG
fish oil
I think you get the picture

So upon doind EXTENTIVE HOMEWORK
"I" decided to take charge
And begun the introduction of my missing LINK

and guess what
I began to feel better
I was afraid
Me
As some who have really gotten to know me
Was AFRAID to post that I began to FEEL BETTER IN JUST THREE DAYS
I WAS AFRAID I WOULD BE LOOKED UPON AS A NUT
A HYPOCHONDRIAC
IT BE PSYCHOSOMATIC
YOU UNDERSTAND
THIS MUCH I KNOW FOR SURE
In reguards to this horrible depression I was in for three years
I started with the Lexepro
And continued to get worse

And here while I lived in this deep dark abyss
I continued therapy with my shrink
I had much time vested in him
I did not want to start all over again
And said to myself
Once he goes that's it
I'm done with the umpteen shrinks I have seen throughout my lifetime
In the very end I fired him
He thought I did not know what I was talking about
He did not go to bat for me with the insurance company
Well it did not sit well with him
It was bothering him
He tried to call me twice
After getting home
On the third call I picked up
You know Sam
When You express EXACTLY what it is you are feeling
Or how it is Your brain is feeling and effecting other areas
in your life
JUST LIKE MINE

my point here
I HEAR YOU
I beleive in what you explain

It too was difficult for me to express to my shrink
It is so deep (talking about my depression) that It too
also manifested in a PHYSICAL WAY

I DO NOT HAVE THAT VISIT FROM DOOM FIRST THING I STIR
IN THE MORNING AND have been trying to fight it off with no luck
And then there was the root cause of
"IT"
I was in disbelief
But because I share my experience
strength of which You have a lot of
and Hope
Hope I may help someone else understand they are NOT ALONE

We are listening
This you must See

We care very much about You
and the years ahead of you

You cannot see it
But you are a strong
Brave person
Who deserves to have someone in his life who believes in what only you know you are going through
ONLY YOU KNOW WHAT HAS CHANGED AFTER THE FALL
remembering it emanated from then
Am I correct in that
There are so many of us who suffer in so many different ways

Turns out my eldest who has occipital lobe epilepsy
Cause idiopathic
I don't think so
So
I just by curiosity
And most importantly
BECAUSE AFTER HER PARTIAL REMOVAL OF HER OCCIPITAL LOBE
as this mutation causes "neural tube defects"
And I found a connection
Infact highly possible

You need you support group
May it be mom
But I urge you
Please do not give up
I hear you
I beleive you
I am so proud of you
You too matter
Love
Me

Sam just wanted to add
I cannot stop thinking how badly it feels as a young man
Who knows His body like no other
But Your creator
You remind me so much of me
And brought back some hard core memories
Please Sam
Please
Don't give up the
FIGHT
you ARE strong in Spirit
That counts for something
Make no mistake
We are all carried by our Creator
One time or another in our lifetime
With much care
Me
__________________
someone who cares
eva

Last edited by eva5667faliure; 04-11-2016 at 10:47 AM.
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