Updating for my records.

Genetic testing is in and will get results this Friday morning. I am so hopeful this will finally give us some answers.

Dd is doing pretty good. She did stay in the bed most of Saturday and Sunday from being exhausted and pain. She also started her monthly Sunday so may be a connection.

She has developed yet another new symptom. Thursday she woke up complaining of her scalp and neck itching and burning with some sort of rash. As it progressed it appeared to be hives. It has not subsided as of today 6 days. It seems to move around on her body. Sometimes she can actually feel the hives before they pop up. She also has very intense burning sensation on her scalp which seems to move around a bit.

We have not been completely successful with clean diet still trying to get remaining gluten out of diet. We are going grocery shopping Friday and plan to be 100% gluten, processed food, free by Monday. Dd is committed to it for a full month so we can see how it affects her. Still not taking any meds which is a good thing but also has no relief from mirage of symptoms other than to try and distract herself.

Will update with genetic testing results Friday. Keep fingers crossed, say prayers, wish us luck that we will find some answers.