Originally Posted by JoannaP79

Hi everyone,

I have trawled through posts to find answers to this. Apologies to those who may have already had this discussion but if anyone is informative on this subject, it would be great to hear. I find the internet does not have much info on sensory ganglionopathies.

Does anyone know whether a NLD neuropathy means without question that it is a ganglionopathy? I don't know how else and by what mechanism one would suffer full body nerve damage. I have it everywhere. It started in thighs and is full on in my legs, buttocks, arms and now face and the teeth are getting it badly at the moment.

I would love to hope it was not a ganglionopathy as chances of improvement I know are pretty limited. As many of you understand, the desire to know exactly what is happening is overwhelming.

Thanks all