Hi Joanna
Your despair about your condition is something many of us can relate to. This forum is one place to get caring support but I sense that you would like to have more one to one contact and support and to share your experience with someone who knows what you're going through.
I'm don't know what part of South UK you are in but here's a link to a Chronic Pain Support Group in Suffolk. (Run by patients for patients)
http://www.chronicpainsupportgroup.c...x.php/meetings
Even if they are not near you maybe you can contact them and they can tell you if there is a group (or maybe an individual member) nearer to you.
I understand your son is very important to you but in order to continue being strong for him it's essential you take some time just for yourself to recharge your own batteries. If you're able to put in place some sort of occasional care for him (family or friends maybe?) and allow yourself time to just do whatever you need to sustain your own well-being.
Take care - we're here whenever you need to vent.