Member
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Join Date: May 2014
Location: Buffalo, NY
Posts: 543
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Member
Join Date: May 2014
Location: Buffalo, NY
Posts: 543
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I know topamax is used for migraines as well as neuropathy, far down the treatment path. That's how I found it. I take 50 mg twice a day. It has taken the shooting pains in the calf down 80-90 percent if I don't over do it. Over doing it is easy.
It made resting and often sleeping possible. That is why its massive side effect of a metallic taste, which morphed into a reduced sense of taste is worth it. I think many people would bristle at this quid pro quo, however I was getting by on such fractured sleep that occassional full hours of sleep in a row are worth dull tasting food.
I keep my eye out for other options as far as medication and yes I still have bad days related to that symptom, but it is fractional. I do refuse to titrate up, which is a goal I think, but I have zero interest in that.
I hope you find something to take the edge off your symptoms but I would like to point out the laundry list of potential side effects for topamax. Also, I'd imagine (though do not know) that headache doses wpuld trend higher.
My best,
Jon
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I urge you to please notice when you are happy, and exclaim or murmur or think at some point, "If this isn't nice, I don't know what is." - Kurt Vonnegut
"It's an art to live with pain, mix the light into grey"- Eddie Vedder
Just because I cannot see it, doesn't mean I can't believe it! - Jack Skellington
Last edited by KnowNothingJon; 04-18-2016 at 09:00 PM.
Reason: fragment
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