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Originally Posted by KnowNothingJon
The weather here is crushing me- it was 60 and Sunny Sunday (ok) high 30s and raining Monday (ugly). The last few days have been damp and cold and I have had flaring accordingly.
SFN not yet confirmed by biopsy(incoming May) but my neurologist assures me that along with my confirmed long fiber neuropathy I present SFN.
I know others have issues too, though commonality, I'm unsure.
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It's raining again, so I hurt bad today and need to keep this short, but wanted to say I went to a major teaching hospital (Univ of KS hosp) and was assigned to a neurologist who cares and is willing to treat me!
She explained my symptoms present as one of 3 things (or combinations) - auto-immune, autonomic and CRPS. She is testing for the first 2. CRPS will most likely be a diagnosis of exclusion. I've posted elsewhere that I am terrified of the EMG/NC test, but b/c she invites a team approach, I have agreed to undergo 3 of them at the end of May (is there an emoji for terrified?)